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Featured Issue:

Employment. Get the latest on our work advancing opportunities for real work for real wages for people with disabilities, including bills expanding competitive integrated employment and ending subminimum wage for people with disabilities.  More on employment here.


We know it can be hard to keep up with everything that’s happening so we created a page to give you a few quick facts and updates about the most pressing issues.

To stay up to date visit What We’re Watching and sign up for our email list.

Recent Medicaid Updates:

August 12, 2019

On August 12, 2019, the Department of Homeland Security announced that it had finalized the “public charge” rule.  The final public charge rule, like the proposed rule, will be devastating to — and explcitly discriminates against — people with disabilities and other health conditions their families who are seeking to enter the U.S. or applying for a green card.   This fact sheet from the Kaiser Family Foundation explains the final public charge rule.  We expect lawsuits will be filed challenging the final rule.  The public charge rule will become effective on October 15, 2019, if litigation doesn’t prevent the rule from going into effect.   Learn more about the final rule at the Protecting Immigrant Families Coalition website, and keep checking back here for updates.   

August 1, 2019

The Office of Civil Rights of the Department of Health and Human Services (HHS) has issued a new proposed rule that would significantly weaken the current rules interpreting Section 1557 of the Affordable Care Act (ACA). The proposed rule would severely weaken all of the ACA’s anti-discrimination protections for everyone, including people with disabilities. For an analysis of all of the changes proposed to Section 1557, see this Q&A from the National Health Law Program and this explainer from the Consortium on Citizens with Disabilities (CCD) about impacts on people with disabilities.  More information and resources on the proposed rule is hereThe public has until August 13th to submit comments. It is critical that you make your voice heard opposing these rollbacks in the ACA’s anti-discrimination protections. To submit a comment directly to the federal register, click here and follow the instructions on the page.  Here are model comments for disability advocates from CCD.

July 2, 2019

On July 9, 2019, the U.S. Court of Appeals for the 5th Circuit will hear oral argument in Texas v. United States, the lawsuit challenging the Affordable Care Act (ACA). The appeals court is reviewing a federal trial court’s decision striking down the entire ACA as unconstitutional, including its protections for people with pre-existing conditions. This would be devastating to people with disabilities.  The Supreme Court will likely make the ultimate decision in this case, and the ACA remains in place during the lawsuit. Learn more about the case here and how you can get involved here

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