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Learn about how to take action to oppose the proposed “public charge” rule that discriminates against people with disabilities here.


We know it can be hard to keep up with everything that’s happening so we created a page to give you a few quick facts and updates about the most pressing issues.

To stay up to date visit What We’re Watching and sign up for our email list.

Update: October 15, 2018
The Centers for Medicare & Medicaid Services (CMS) will be holding an Electronic Visit Verification (EVV) Stakeholder Forum on November 7, 2018 from 1 to 3 pm EST. This is an important opportunity to share your concerns and ask questions about EVV, a tracking system that requires electronic verification of when a person receives Medicaid-funded personal care or home health services. Learn more about the stakeholder call, including how to send questions and comments in advance here.  To lean more about EVV in general, visit here.

Update: September 17, 2018
Thanks to your work, the EMPOWER Care Act, H.R. 5306, a bill funding Money Follows the Person (MFP) passed out of the House Energy & Commerce committee last week! This is another key step toward helping people living in nursing facilities and other institutional settings move back into their community! The current House bill reauthorizes the program for a year. One year is better than none, but we will continue to advocate for a longer time.  Support MFP by educating your members of Congress about the importance of MFP and the need for it to be reauthorized immediately. You can call the main Capitol line at: (202) 224-3121 (voice) or (202) 224-3091 (TTY).

Update: July 31, 2018 
Thanks to your efforts, a bill delaying Electronic Visit Verification (EVV) for a year passed!  The bill was signed by the President on July 30, 2018, delaying the deadline for a state to implement an EVV system or lose a percentage of Medicaid funding for one year. A delay will give advocates more time to address the significant concerns with EVV and its potential impact on people with disabilities.  We will keep you updated on next steps.